Rare disorders

With the number of recognised rare disorders at more than 8000 and rising, their combined prevalence makes them uncommonly common. In people with these disorders, supportive, long-term, consistent and accessible contact with primary care is central and essential. This article provides a heuristic framework for the care and management of a person with a rare disorder and their whānau

This article was written by Rosemary Marks, Stephen Robertson and Anna Latu